welcome to oneEDSvoice
- a positively charged Ehlers Danlos Syndrome community.- join today!
- login
Rare Disease week on Capitol Hill
The Rare Disease Week on Capitol Hill Legislative Conference and Lobby Day is an event established for patients and caregivers, patient advocates, and patient advocacy organizations. While representatives from industry are invited to attend the Legislative Conference, the lobby day is for patients and caregivers, patients advocates, and patient advocacy organizations only.
We are excited to welcome rare disease advocates from across the country to Rare Disease Week on Capitol Hill 2020 in Washington, DC from February 25-28, 2020. Stay tuned for more information about the event.
This event has ended.
expertly curated content related to this topic
-
WellapaloozaWellapalooza integrative health & we...
-
Vascular EDS Conference 2020 – PostponedWe are sorry to announce that we have ta...
-
#DazzleVegas 2017 EDS Global Learning ConferenceThe Ehlers-Danlos Society would like to ...
-
2018 Alexander technique workshopThe Ehlers-Danlos Society is excited to ...
-
New Jersey EDSers United Meet Ups & EventsEDSers United is dedicated to establishi...
-
Traveling by Air When You Have Ehlers Danlos Syndrome(Editor's note: if you're attending this...
-
What to Expect at the EDS Global Learning ConferenceGoing to an Ehlers-Danlos Syndrome Confe...
