welcome to oneEDSvoice- a positively charged Ehlers Danlos Syndrome community.
- join today!
‘Rare Disease Day’ takes place worldwide, typically on or near the last day of February each year, to raise awareness among policymakers and the public about rare diseases and their impact on patients’ lives. Each year, NCATS and the NIH Clinical Center (CC) sponsor Rare Disease Day at NIH as part of this global observance. This year’s global theme is “bridging health and social care.”
Thursday, Feb. 28, 2019
8:30 a.m.-4:00 p.m. ET
Main Auditorium, Natcher Conference Center, Building 45
National Institutes of Health
Bethesda, Maryland, USA
This event has ended.
expertly curated content related to this topic
2017 EDS Global Learning Conference: Day 1 WrapTo say that the 2017 EDS Global Learning...
PCORI-funded Ehlers Danlos Comorbidity Coalition Meets for the First Time In-PersonThe Ehlers-Danlos Society was approved f...
Vascular EDS Conference, May 2017Annabelle’s Challenge and The Ehlers-D...
The European Ehlers Danlos Syndromes conferenceWe are very excited to bring together le...
2018 Ehlers-Danlos Society Learning Conference AustraliaAfter years of demand and need The Ehler...
Rare Disease week on Capitol HillRare Disease Week on Capitol Hill brings...
New Jersey EDSers United Meet Ups & EventsEDSers United is dedicated to establishi...