Rare Disease Day - Home | oneedsvoice

welcome to oneEDSvoice

- a positively charged Ehlers Danlos Syndrome community.
  • join today!

Rare Disease Day – Home


Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. The campaign targets primarily the general public and also seeks to raise awareness amongst policy makers, public authorities, industry representatives, researchers, health professionals and anyone who has a genuine interest in rare diseases.

Rare Disease Day 2018 is happening on February 28th! There are many ways to get involved like sharing your story and attending an event.

How will you #ShareYourRare

https://www.rarediseaseday.org/images/logo-rare-disease-day.png