PCORI-funded Ehlers Danlos Comorbidity Coalition Meets for the First Time In-Person | oneedsvoice

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PCORI-funded Ehlers Danlos Comorbidity Coalition Meets for the First Time In-Person


The Ehlers-Danlos Society was approved for a $50,000 funding award by the Patient-Centered Outcomes Research Institute (PCORI) to support a project to develop an Ehlers-Danlos Comorbidity Coalition.

The Ehlers-Danlos Society is using the funds provided through PCORI’s Pipeline to Proposal Awards program to build a partnership of patients, researchers, and other stakeholders who are focused on addressing the common health issues associated with this group of high morbidity, high-disease-burden conditions, leading to the development of a patient-centered research proposal. The coalition will help to develop partnerships, governance infrastructure, channels of communication, and an outreach plan which will form a solid foundation for future collaborative work.

To know more about the project, refer the news:
The Ehlers-Danlos Society Approved for a $50,000 Funding Award by the PCORI

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