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It’s not in my Head’: Hope for Sufferer of Rare Joint Disorder

Gendi Roberts was just eight years old when she received the life-changing news that she had Ehlers Danlos Syndrome. Twelve years later the Christchurch girl is in desperate need of the specialist care in Baltimore that will help treat her severe spinal instability. Ehlers Danlos Syndrome (EDS) is a rare disorder that causes hyper joint mobility.


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