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Heartbroken parents lose their third child to vEDS and now fight for awareness and training

The family first lost 16-year-old Charlotte to the condition in 2010. 17-year-old Craig’s death in 2013 was the second tragedy to strike the family. Robert and Maggie Underwood have described feeling “numb” following their loss but have vowed to continue fundraising for equipment that could potentially save many lives in the future.

According to the BBC, the heartbroken couple have been calling for defibrillators to be available in schools ever since their first child’s death. At the time, Charlotte’s tragic demise was put down to Sudden Arrhythmia Death Syndrome (SADS).


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