welcome to oneEDSvoice
- a positively charged Ehlers Danlos Syndrome community.- join today!
- login
Heartbroken parents lose their third child to vEDS and now fight for awareness and training
The family first lost 16-year-old Charlotte to the condition in 2010. 17-year-old Craig’s death in 2013 was the second tragedy to strike the family. Robert and Maggie Underwood have described feeling “numb” following their loss but have vowed to continue fundraising for equipment that could potentially save many lives in the future.
According to the BBC, the heartbroken couple have been calling for defibrillators to be available in schools ever since their first child’s death. At the time, Charlotte’s tragic demise was put down to Sudden Arrhythmia Death Syndrome (SADS).

expertly curated content related to this topic
-
27 Lessons I’ve Learned Living With Ehlers-Danlos Syndrome and POTSI’ve been disabled for four years and ...
-
For 20 years, Karen has been managing her pain with a strict daily regimen of opioids“My nerve damage causes pain, and wher...
-
When your illness has been ruling your life without you knowing itThree days before my 30th birthday, I hi...
-
Ehlers Danlos Syndrome – Emergency Physician ReferenceHere is a condensed list of life saving ...
-
The Masseuse Who Pulled My Arm OutI was away at a fancy spa and thought I'...
-
The Subtle Arrogance of Good HealthUntil my physical ailments began worseni...
-
That Silver SpoonieHi, I'm a 25 year old Spoonie who's been...