welcome to oneEDSvoice- a positively charged Ehlers Danlos Syndrome community.
- join today!
Ehlers-Danlos Society Receives Transformational Gift to Accelerate Genomic Research into Hypermobile EDS
The Ehlers-Danlos Society has announced the largest single donation in its 33-year history to establish an international research network of leading physicians, geneticists, and other health professionals devoted to finding the underlying genetic markers for hypermobile Ehlers-Danlos syndrome (hEDS) and hypermobility spectrum disorders (HSD).
From Transformational Gift to Ehlers-Danlos ‘MOONSHOT’
The anonymous gift of $1 million dollars, represents the largest individual gift in the history of hypermobile EDS research.
“Because hypermobile Ehlers-Danlos lacks a known genetic cause, this truly has the potential to be a transformational gift,” states Lara Bloom, International Executive Director of The Ehlers-Danlos Society, a global leader in Ehlers-Danlos research, collaboration, and support.
expertly curated content related to this topic
Genetic Dissection of Marfan Syndrome and Related Connective Tissue Disorders: An Update 2012Marfan syndrome (MFS) is an autosomal do...
Sleep-disordered Breathing in Ehlers-Danlos Syndrome: A Genetic Model of OSAOBJECTIVES: The objective of this study...
Intelligent Exercise-How You Can Take Control with EDShttps://www.youtube.com/watch?v=2LC-qUej...
Arianna Pflederer: My Ehlers-Danlos Syndrome Diagnosis Storyhttps://www.youtube.com/watch?v=fysY46RJ...
@ZebrafishspoonyI am a real life zebra! I have Ehlers-Da...
ehlers.danlosThe Ehlers-Danlos Society We are a nonpr...