Ehlers-Danlos Society Receives Transformational Gift to Accelerate Genomic Research into Hypermobile EDS | oneedsvoice

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Ehlers-Danlos Society Receives Transformational Gift to Accelerate Genomic Research into Hypermobile EDS


The Ehlers-Danlos Society has announced the largest single donation in its 33-year history to establish an international research network of leading physicians, geneticists, and other health professionals devoted to finding the underlying genetic markers for hypermobile Ehlers-Danlos syndrome (hEDS) and hypermobility spectrum disorders (HSD).

From Transformational Gift to Ehlers-Danlos ‘MOONSHOT’

The anonymous gift of $1 million dollars, represents the largest individual gift in the history of hypermobile EDS research.

“Because hypermobile Ehlers-Danlos lacks a known genetic cause, this truly has the potential to be a transformational gift,” states Lara Bloom, International Executive Director of The Ehlers-Danlos Society, a global leader in Ehlers-Danlos research, collaboration, and support.

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