welcome to oneEDSvoice- a positively charged Ehlers Danlos Syndrome community.
- join today!
The Ehlers-Danlos Society Approved for a $50,000 Funding Award by the Patient-Centered Outcomes Research Institute
The Ehlers-Danlos Society has been approved for a $50,000 funding award by the Patient-Centered Outcomes Research Institute (PCORI) to support a project to develop an Ehlers-Danlos Co-Morbidity Coalition.
The Ehlers-Danlos Society will use the funds provided through PCORI’s Pipeline to Proposal Awards program to build a partnership of patients, researchers and other stakeholders who are focused on addressing the common health issues associated with this group of high morbidity, high-disease-burden conditions, leading to the development of a patient-centered research proposal.
The coalition will help to develop partnerships, governance infrastructure, channels of communication and an outreach plan which will form a solid foundation for future collaborative work.
expertly curated content related to this topic
Patient Education Program and Ehlers-Danlos Syndrome (PREDUSED)The Ehlers-Danlos Syndrome (SED) compris...
Ehlers-Danlos Syndrome in a DogA 7-month-old, female Alaskan malamute, ...
If You Can’t Connect the Issues, Think Connective Tissues (Heidi Collins, MD)https://www.youtube.com/watch?v=H0jaF6Rn...
Ehlers-Danlos Syndrome: Your Eyes and EDSEhlers-Danlos Syndrome (EDS) patients of...
‘Most Neglected Disorder in Modern Medicine’ Receives Major Classification UpdateThe American Journal of Medical Genetics...
Ehlers Danlos Syndrome (Ash)Information on Ehlers-Danlos Syndrome...