welcome to oneEDSvoice

- a positively charged Ehlers Danlos Syndrome community.
  • join today!

Love, Zebras, and Ehlers Danlos Syndrome

Hi everyone! I am Cheyenne and I am 22. In early 2012 I was diagnosed with Ehlers Danlos Syndrome type 3 & 4. I am starting this page that way I can share my journey, and the knowledge I gain along the way! Hopefully I can help another EDSer out there, and maybe make them feel like they aren’t the only “Zebra” out there. I hope to one day be an advocate for EDS and spread awareness by speaking to doctors, nurses, medical students, physical therapists, etc… and teach them about EDS that way patients can get the care they need!

expertly curated content related to this topic