welcome to oneEDSvoice

- a positively charged Ehlers Danlos Syndrome community.
  • join today!

Little Zebras ; Life With Ehlers Danlos Type 3- “Hyper-mobility Syndrome”


This group is meant for parents of children 12 and under who have Ehlers Danlos Type 3- also known as Hyper-mobility syndrome. It’s purpose is for parents to share information that they come across… Talk about Life Experiences, vent and ask questions About living our daily lives with EDS. Please- no judging, or negative comments towards each other. You have the right to share your medical opinions and experiences but we are not doctors – take advice at your own risk!