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- a positively charged Ehlers Danlos Syndrome community.
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Ehlers Danlos Treatment and Social Support Group


There is an extreme lack of awareness in the medical field regarding diagnosis and treatment of all types of Ehlers Danlos Syndrome. How many of you have told a medical professional about your EDS and gotten the blank stare back at you? Because of this lack of awareness; we zebras need to band together to share our treatments and knowledge and also to have some fun! We all struggle with various symptoms that cause us to be isolated. So let’s support each other, play games and share treatment options to help us all cope. All treatments including alternative treatments are important to share!