welcome to oneEDSvoice
- a positively charged Ehlers Danlos Syndrome community.- join today!
- login
Ehlers Danlos Treatment and Social Support Group
There is an extreme lack of awareness in the medical field regarding diagnosis and treatment of all types of Ehlers Danlos Syndrome. How many of you have told a medical professional about your EDS and gotten the blank stare back at you? Because of this lack of awareness; we zebras need to band together to share our treatments and knowledge and also to have some fun! We all struggle with various symptoms that cause us to be isolated. So let’s support each other, play games and share treatment options to help us all cope. All treatments including alternative treatments are important to share!
expertly curated content related to this topic
-
Clinici Ehlers Danlos Italia (CEDI)CEDI is an association of NGO National b...
-
Dysautonomia Youth Network of America, Inc.Founded in 1999 and professionally certi...
-
Ehlers Danlos IowaThis is a family support group for Iowan...
-
Ehlers-Danlos Foreningen i DanmarkEhlers-Danlos Association in Denmark's o...
-
Linda Neumann-PotashLinda Neumann-Potash is a Case Managemen...
-
Ashton Nesmith-KocheraAshton was diagnosed with Ehlers-Danlos ...
