welcome to oneEDSvoice

- a positively charged Ehlers Danlos Syndrome community.
  • join today!

Ehlers Danlos syndrome- Its time to get it recognised


This group has been created to help raise awareness of (EDS) Ehlers Danlos syndrome/Hyper-mobility. Many people i have spoken to as well as myself have been heartbroken due to not having the support and understanding from friends and family. People living with a condition like EDS find without the support they need, their condition and coping mechanisms can be a lot harder to manage. I am hoping that with this group i can help people realise that they are not alone and hopefully we can share our stories and worries, this group will remain closed so people feel able to express themselves freely. I am setting up a new page that will be open, where people can direct there friends and family to raise awareness of this condition and how it affects our lives and daily activities.

expertly curated content related to this topic