welcome to oneEDSvoice
- a positively charged Ehlers Danlos Syndrome community.- join today!
- login
Ehlers Danlos Syndrome and Tethered Cord Syndrome
This is a support group for people with Ehlers Danlos Syndrome who have or suspect tethered cord syndrome, also known as occult tethered cord, also known as tight filum syndrome. We will share resources for diagnosis, treatment options, and recovery. Members of this group cannot provide medical advice.
The focus of this group is Ehlers-Danlos Syndrome and tethered cord syndrome. Please keep posts related to both. There are many other general EDS support groups. Any posts that are not related to EDS and TCS may be deleted at admins discretion.
expertly curated content related to this topic
-
Hospital PrincessThese are the ramblings of my chronic, 2...
-
The One Piece of Advice Anyone With Illness Should RememberBefore my diagnosis, doctors visits wher...
-
POTS and Hypermobility Syndrome – Blair Grubb, MDhttps://www.youtube.com/watch?v=kBvmtH-1...
-
Joint Hypermobility Syndrome (Ehlers-Danlos): What Causes The Pain?Are you so flexible you can do tricks? D...
-
House of Zebra Hoof-Beats (Ehlers – Danlos Syndrome Support Group)This is a group specially designed for t...
-
Ehlers Danlos Syndrome Lifestyle & Therapy IdeasWhat different modalities have you found...
