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Ehlers Danlos Syndrome and Tethered Cord Syndrome


This is a support group for people with Ehlers Danlos Syndrome who have or suspect tethered cord syndrome, also known as occult tethered cord, also known as tight filum syndrome. We will share resources for diagnosis, treatment options, and recovery. Members of this group cannot provide medical advice.

The focus of this group is Ehlers-Danlos Syndrome and tethered cord syndrome. Please keep posts related to both. There are many other general EDS support groups. Any posts that are not related to EDS and TCS may be deleted at admins discretion.

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