welcome to oneEDSvoice
- a positively charged Ehlers Danlos Syndrome community.- join today!
- login
Ehlers- Danlos Syndrome Network C.A.R.E.S. Research
The Value of Medical Research. Why is Ehlers-Danlos Syndrome(EDS) research so important for our disease. Medical research is a search for treatments and for helping find cures. It’s so critical to understand EDS, especially the vascular type because people with vascular type can die before the age of 50yrs old. It’s also important that the pharmaceutical industry participates in the development process.
When we recently heard why another EDS foundation doesn’t do research when they say they do research on their website, one of their members said because they are too small, so they just concentrate on awareness and support. They just can’t do it all. Another member said that this EDS foundation told people to give their donation right to the lab. Those guidelines were set-up by this same EDS foundation.
expertly curated content related to this topic
-
Ehlers Danlos Western Sydney & Blue MountainsEDS networking for people in Blue Mounta...
-
@ZebrafishspoonyI am a real life zebra! I have Ehlers-Da...
-
Ehlers-Danlos/Hypermobility Syndrome.For people with Ehlers-Danlos Syndrome, ...
-
Gastrointestinal Involvement in the Ehlers–Danlos SyndromesCurrent evidence suggests that an associ...
-
Ehlers-Danlos Support WilmingtonWelcome to the "Ehlers-Danlos Support Wi...
-
Wearing a Compression Garment for Patients With Hypermobility Type of Ehlers-Danlos Syndrome (VETCOSED)The Ehlers-Danlos syndrome (EDS) is a ra...
-
Association between EDS and Gut Problemshttps://www.youtube.com/watch?v=qR0vHXdc...