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Ehlers Danlos Support-greater Philadelphia Area


This group provides support, information, and friendship to those affected by Ehlers-Danlos Syndrome in the greater Philadelphia region. We welcome people with EDS and their families, including those who suspect they have EDS and are interested in pursuing a diagnosis.

We are looking for volunteers to help plan and host meetings. If you are interested in hosting a meet-up near you or otherwise volunteering, please get in touch with a moderator (Amie or Rebecca). EDS Philly is committed to providing accurate information about Ehlers-Danlos Syndrome and related topics. However, this group is not intended as a substitute for professional medical advice. Please feel free to chat about the diagnostic process, doctors, symptoms, medications, therapies, tests, research, etc. – just make sure you run any decisions by the appropriate member/s of your treatment team first.

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