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Ehlers Danlos Outside of the Box!


Ehlers Danlos: Out of the Box! is a lively forum in which we sometimes share medical research, articles, and abstracts, in hopes that our combined efforts will aid the CTD community in advocating for ourselves and others, while providing needed support in order to further knowledge, hope, support and mutuality. The ever-changing face of research in connective tissue disorders is daunting, as are the complex, related systemic issues that we often face. Any information we share in this group is not intended to be a substitute for professional medical advice; should you find any of the research pertinent to your situation, please consult your physician, as always. Most importantly, please also contact your medical specialist for any medical advice or emergencies.

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