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Ehlers-Danlos, Marfan and Related CTDs New England/MA Support Group

This F/B Ehlers-Danlos Syndrome NE/MA “home within a home,” hosts EDS news, webinar or webinar(s) for EDS support; this group was started on April 22, 2013.
Led by Jon Rodis, the EDS New England/MA support group database (along with quarterly meetings at Children’s Hospital Waltham), boasts well over 700 members, not just in New England, but throughout the country and beyond. The goal of this support group is to be a springboard/grassroots network for those who have joined the database.

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