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Ehlers-Danlos Syndrome(EDS) is grossly under and/or mis-diagnosed: some 90% with EDS never receive a proper diagnosis or treatment within their lifetime.
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Ehlers Danlos and POTS Group!This group is for people who suffer from...
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Ehlers Danlos Support-greater Philadelphia AreaThis group provides support, information...
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Being Built Wrong: One Woman’s Struggle with Ehlers-Danlos SyndromeThe following story was written in 2010 ...
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The Ehlers-Danlos SocietyNon-profit organisation in Montgomery Vi...
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Ehlers Danlos Community open discussionsThis is a group for those diagnosed with...
