DC Metro Ehlers-Danlos Syndrome Group

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  DEFY Foundation

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  The Canadian Ehlers Danlos Association

  A place for people who live with Ehlers-...
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  @NadiaBodkin

  President/CEO of WIRC by EDSers United. ...
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  Nadia Bodkin, PharmD, MS

  Nadia is a seasoned rare disease advocat...
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  EDS Today

  EDS Today outreaches to help those in a ...
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  Little Zebras ; Life With Ehlers Danlos Type 3- “Hyper-mobility Syndrome”

  This group is meant for parents of child...
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  Ann Rodiger, M.AmSAT

  Ann Rodiger is the Founder and Director...