ANSEDH, Asociación Nacional del Síndrome de Ehlers-Danlos e Hiperlaxitud | oneedsvoice

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ANSEDH, Asociación Nacional del Síndrome de Ehlers-Danlos e Hiperlaxitud


ANSEDH, National Association of Ehlers-Danlos Syndrome and Hyperlaxity, is a non-profit organization whose objectives are: to support, help and guide those affected by the disease and their families.

We also want to divulge all the knowledge related to pathology because we consider it of paramount importance that the patient can obtain concrete information about his illness, symptoms and treatments. Finally, we want to make the disease visible in order to raise awareness among physicians, institutions and society in general, and to promote its study and scientific research.