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    RobinoSz_ns Jul 15 2019 2:48 am

    Acer Therapeutics Obtains Exclusive License to Celiprolol Pivotal Clinical Data from AP-HP

    “We have studied celiprolol for nearly two decades in vEDS patients and this is the only drug ever to demonstrate a clinical benefit in a randomized, controlled clinical study,” said Pierre Boutouyrie M.D., Ph.D., co-director of the clinical pharmacology service at the Georges-Pompidou European Hospital AP-HP and Principal Investigator for the celiprolol

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    RobinoSz_ns Jul 12 2019 4:50 am

    Genetics of Ehlers-Danlos Syndrome

    We are planning to collected blood and saliva for DNA extraction to use for genetic testing of children and adults with EDS and their relatives. Medical records from other institutions and clinical notes for visits in Dr. Holick's clinic will be reviewed to obtain the following information: previous diagnosis at other institutions, age, clinical signs and symptoms of EDS, Joints Hypermobility Syndrome (JHS), , an

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    RobinoSz_ns Jul 12 2019 4:49 am

    Genetics of Ehlers-Danlos Syndrome

    We are planning to collected blood and saliva for DNA extraction to use for genetic testing of children and adults with EDS and their relatives. Medical records from other institutions and clinical notes for visits in Dr. Holick's clinic will be reviewed to obtain the following information: previous diagnosis at other institutions, age, clinical signs and symptoms of EDS, Joints Hypermobility Syndrome (JHS), , an

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    RobinoSz_ns Jul 12 2019 4:43 am

    9 year old with Ehlers Danlos Syndrome signs contract to become an honorary member of the Northern Kentucky University's volleyball team

    Two sisters, 7 and 9, signed national letters of intent, inking contracts with Northern Kentucky University’s volleyball team.

    Taylor Conrad and Leah Conrad, of Florence, were presented with jerseys on Monday for the upcoming season. They signed their letters in front of a packed room of family, friends and

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    RobinoSz_ns shared RobinoSz_ns's post Jul 12 2019 4:38 am

    Ehlers-Danlos syndrome affects connective tissue, primarily the skin, joints and blood vessel walls.
    Symptoms include overly flexible joints that can dislocate, and skin that's translucent, elastic and bruises easily. In some cases, there may be dilation and even rupture of major blood vessels.
    Treatment helps manage symptoms and monitor for complications. Options include drugs, physiotherapy and sometimes surgery.
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