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Ehlers Danlos Syndrome

encouragement & knowledge
community platform

Welcome to onevoice for oneEDSvoice (Ehlers Danlos Syndrome), a place to find knowledge and resources and to connect with others!

We scour the Web for quality information about oneEDSvoice, and we curate it so that you have a premier resource for that rare disease. Anyone - patients, caregivers, friends, family, researchers, and physicians or other healthcare professionals - is invited to join the community to talk and share and encourage. Onevoice is unlike anything else out there.

7 pillars. one voice. share yours.