oneEDSvoice | Ehlers Danlos Syndrome

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popular content
Ehlers–Danlos Syndrome—Hypermobility Type: A Much Neglected Multisystemic Disorder
Ehlers–Danlos syndrome (EDS)—Hypermobility Type (HT) is considered to be the most common subtype of EDS and the least severe one; EDS-HT is consid... read more
source: Rambam Maimonides Medical Journal
Understanding Vascular Complications: A Primer of Essential Definitions
Blood vessels derive their strength from a web of structural proteins. The vascular complications of EDS arise from a genetic protein defect that pred... read more
source: Ehlers-Danlos National Foundation (EDNF)
The Ehlers-Danlos Syndrome, a Disorder with Many Faces
The Ehlers-Danlos syndromes (EDSs) comprise a heterogeneous group of diseases, characterized by fragility of the soft connective tissues and widesprea... read more
source: Clinical Genetics
What it Was Like to Grow Up With Ehlers-Danlos Syndrome
When I was 6 years old I fell off my bike, and I cried so much that my dad had to carry me inside. For the next few days, I walked around with a bruis... read more
source: The Mighty
17 Things People With Ehlers-Danlos Syndrome Wish Their Doctors Knew
Though people with Ehlers-Danlos syndrome experience a wide array of symptoms and may present the condition in many different ways, most EDS “zebras... read more
source: The Mighty
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