encourage media feed - oneEDSvoice community ignites!
- have an instant community where everyone is friends - no need to send requests
- create your rareTeam of closest friends, family members, caregivers and healthcare providers connect with them during crisis
- EDS-Related info panels - learn more because oneEDSvoice does the research for you!
- use the sentiment palette to clickEmoteTM by sending and receiving hugs, thanks, prayers and cares - no more awkward "like" buttons
clinical trials & features designed for easier access
- find opportunities to participate in research, and advance the pursuit of treatments and cures
- easily locate clinical trial centers who need you and are near your home
- get a clinical trial report that matches you with clinical trials
- become or find a real-person mentor to support and guide each other in clinical trials
- learn more about clinical trials in our education center of videos and step-by-step guides
trustworthy disease information curated by experts
- scientific papers written by the researchers and doctors studying treatments and cures
- bios and profiles of expert doctors, counselors, advocates and other leaders
- the rest of the internet - we found super cool stuff, including movies, fundraisers, patient assistance programs and more
- the latest news about Ehlers Danlos Syndrome
- patient videos, slidedecks and infographics
- constantly updated 24/7
our positive community, right in your pocket
- medical history
- physician contact information
- personal intro video with your friends, family and medical team
- out of town? need to find an ER?
- request medical assistance and geolocate centers to get you help fast
- stay in touch with your EDSTeam of friends, family and medical team during your crisis.
- send photos, chat and pass the time with positive support